Hey guys, just wanted to pass along a heads-up on where I've been for a long while. Last June, my wife and I found out we were having twins. Things progressed just fine until the 20-week ultrasound, where we found out one of the twins had a heart defect called Hypoplastic Left Heart Syndrome, which basically means he'd be born with half a heart. In December 2012, Grant and Nolan were born at about 36 weeks old. Nolan was taken to NICU in preparation for his first open-heart surgery, which was when he was 7 days old. Surgery went well and I couldn't believe how many machines were hooked up to my 4.5 pound baby:
Recovery was difficult. 1 in 5 kids going through that first surgery don't make it, and Nolan spent 9 weeks in recovery at Levine Children's Hospital (twice a long as normal). It took 3 attempts to close his chest, and 2 attempts to take out his breathing tube:
FINALLY on February 12, 2013 we were able to bring Nolan home. He had a feeding tube implanted in his stomach (still does) and came home with a bunch of meds and instructions for keeping him alive until his next heart surgery. He has a bunch of Dr appointments as well as in-home therapies, and he's doing well and is up to about 12.5 pounds.
Sometime this summer, he will have his second heart surgery, which will be just as scary, but he's SO tough, and I know he's going to do well.
Anyways, we could really use prayers and nice thoughts as we go through this life-long process with him. It's been scary, joyful, frustrating, exhausting, etc. But it's our life now. I still log on here a bunch to keep an eye on all things Bobcats, but as you can imagine I don't have much time for posting or funny picture-making. Maybe soon I'll get back into it. If anyone wants to follow Nolan's story, please like our facebook page at facebook.com/SupportTeamNolan