Hey guys, just wanted to pass along a heads-up on where I've been for a long while. Last June, my wife and I found out we were having twins. Things progressed just fine until the 20-week ultrasound, where we found out one of the twins had a heart defect called Hypoplastic Left Heart Syndrome, which basically means he'd be born with half a heart. In December 2012, Grant and Nolan were born at about 36 weeks old. Nolan was taken to NICU in preparation for his first open-heart surgery, which was when he was 7 days old. Surgery went well and I couldn't believe how many machines were hooked up to my 4.5 pound baby:
Recovery was difficult. 1 in 5 kids going through that first surgery don't make it, and Nolan spent 9 weeks in recovery at Levine Children's Hospital (twice a long as normal). It took 3 attempts to close his chest, and 2 attempts to take out his breathing tube:
FINALLY on February 12, 2013 we were able to bring Nolan home. He had a feeding tube implanted in his stomach (still does) and came home with a bunch of meds and instructions for keeping him alive until his next heart surgery. He has a bunch of Dr appointments as well as in-home therapies, and he's doing well and is up to about 12.5 pounds.
Sometime this summer, he will have his second heart surgery, which will be just as scary, but he's SO tough, and I know he's going to do well.
Anyways, we could really use prayers and nice thoughts as we go through this life-long process with him. It's been scary, joyful, frustrating, exhausting, etc. But it's our life now. I still log on here a bunch to keep an eye on all things Bobcats, but as you can imagine I don't have much time for posting or funny picture-making. Maybe soon I'll get back into it. If anyone wants to follow Nolan's story, please like our facebook page at facebook.com/SupportTeamNolan
Amour217, its great to hear from you and your family will be in our prayers.
Everybody please like this man's Facebook page!!!!
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Just...wow. God's strength to you and yours Amour.
Hope Resurrected: "I think I can bring an attitude to a team as far as, ‘All right, no matter what, we are not losing this game'." - Kemba Walker
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Wow, thanks for sharing your story. I just had my first kid recently and know how taxing but rewarding it can be. I can only imagine how much tougher its been with your family. Nolan looks like a tough kid, and I'm sure this will be an inspiring story when he suits up at shooting guard for the Charlotte Hornets in 2032!
I don't know if you followed this story, but it seems Greg Olsen of the Carolina Panthers is going through the exact same thing with one of his twin sons:
As far as I know, everything has been successful up to this point. I wish you and your family success in getting through this endeavor.
I've got no words for this...don't think any exist really. My thoughts are with you, Nolan, and the rest of your family, amour.
Go Team Nolan!
"The Charlotte Hornets name has been a mainstay throughout the region for many years, and we are excited to announce our intention to re-establish this historic brand. We believe that its return will galvanize our fan base by unifying our loyal Bobcats fans with those who have strong memories of our city's NBA predecessor." MJ, 5-21-13
Wow you guys are really strong. My thoughts are with you and your family
All the best to you and your family.
Haha your baby is such a cutie also
Proud Australian Bobcats Fan!!!
definite prayers to your whole family.
Much love, man. Hoping for the best.
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SOMEONE will pay for THIS!